Innovative Palliative Care:Für eine neue Kultur der Pflege, Medizin und Betreuung Volker Schulte, Christoph Steinebach
This textbook is the first to focus on comprehensive interdisciplinary care approaches aimed at enhancing the wellbeing of children with cancer and their families throughout the illness experience. Among the topics addressed are the epidemiology of pediatric cancer distress, including physical, emotional, social, and spiritual dimensions; the role of the interdisciplinary team; communication and advance care planning; symptom prevention and management; care at the end of life; family bereavement care; and approaches to ease clinician distress. The contributing authors are true experts and provide guidance based on the highest available level of evidence in the field. The book has not only an interdisciplinary but also an international perspective; it will appeal globally to all clinicians caring for children with cancer, including physicians, nurses, psychosocial clinicians, and chaplains, among others. Joanne Wolfe, MD MPH is the Chief of the Division of Pediatric Palliative Care in the Department of Psychosocial Oncology and Palliative Care at the Dana-Farber Cancer Institute (DFCI) and the Director of Palliative Care at Boston Childrens Hospital (BCH), and is an Associate Professor of Pediatrics at Harvard Medical School. The Pediatric Advanced Care Team (PACT), the palliative care service which she directs, received a 2001 Citation of Honor from the American Hospital Associations Circle of Life Awards program for its innovative approach to caring for children with life-threatening illness. In 2013, Dr Wolfe was the recipient of the American Cancer Societys Pathfinder in Palliative Care Award and in 2014 the Excellence in Scientific Research Award from the American Academy of Hospice and Palliative Medicine. Barbara L. Jones, PhD, MSW, is the Associate Dean for Health Affairs and Professor at the University of Texas at Austin School of Social Work. She is the Co-Director of the Institute for Collaborative Health Research and Practice. Dr. Jones is a Distinguished Scholar and Fellow of the National Academies of Practice where she is also the Vice-Chair of the Social Work Academy. Dr. Jones is the 2014 recipient of the American Psychosocial Oncology Society (APOS) Outstanding Training and Education award. She is the Past President of the Association of Pediatric Oncology Social Workers (APOSW) and recipient of the 2013 APOSW Social Worker of the Year Award. She was a co-investigator on the ExCEL in Social Work, an NCI-funded project to train oncology social workers in psychosocial oncology. Ulrika Kreicbergs, RN, PhD, holds a professorship in palliative care for children and youth at Ersta Sköndal Bräcke University College and is also affiliated to Karolinska Institutet, Stockholm, Sweden. Her research on families with a child affected by cancer has been acknowledged worldwide. She received the Schweisguth Prize awarded by the International Society of Paediatric Oncology in 2004. Dr Kreicbergs did her postdoc at the Dana-Farber Cancer Institute and Boston Childrens Hospital in the US. Dr Kreicbergs has extended her research in paediatric palliative care so as to include also other incurable fatal conditions beyond cancer. Her work is primarily focused on factors in the health care that can be modified or avoided to reduce suffering and thereby enhance quality of life for the child and their families. Momcilo Jankovic, M.D. is the Chairman of the Hemato-oncology Outpatient Clinic of the Pediatric clinic of the University of Milano-Bicocca placed at the Hospital san Gerardo in Monza (MB), Italy including the MBBM Foundation. He received the first Vittorio Ventafridda Award as Italian Pioneer of Pediatric Palliative care in 2007 and the Gold Ambrogino, the highest civic Award of Milano for his activity in the care and assistance of children affected by tumor or chronic diseases in 2010. He is active member in the pediatric section of the Italian Palliative Care Society. He is the responsible of the Home care Unit for children affected by tumors or other chronic diseases chairing a group of fellows and nurses devoted to this project. He contributed in promoting PPC in Italy as a teacher in different scientific Masters and school of professional training.
Hospiz-und Palliative Care in Ober-und Niederösterreich:Ein Systemvergleich zur Erarbeitung innovativer Ansätze für Oberösterreich Gabriela Grabmayr
This book presents the most up-to-date and innovative information on the targeting and treatment of a wide range of childhood cancers by means of radiation therapy. Written by global experts in pediatric radiation oncology, it documents in detail the treatment regimens appropriate to each disease, highlighting the recent advances that promise to improve rates of survival and cure. The use of image-guided and intensity-modulated radiation therapy is clearly described, and careful attention is also devoted to the roles of proton therapy, stereotactic radiosurgery, stereotactic fractionated radiosurgery, and modulated arc radiotherapy. Separate chapters address localization and verification procedures and anesthesia; pediatric radiation oncology in the palliative care setting; and aspects that are especially relevant in low- and medium-income countries. Beyond clinical radiation oncology, relevant information is provided on radiation physics. The book concludes by examining future directions in the field.
Luisa Weidauer beschäftigt sich vor dem Hintergrund wachsender Anforderungen an den Pflegeberuf mit innovativen Prüfungskonzeptionen. Sie entwickelt eine Form der kompetenzorientierten Zwischenprüfung und nutzt hierfür bestehende Ansätze, wie die Performanzprüfung oder den Einsatz von standardisierten Patienten. Im Zentrum der kompetenzorientierten Zwischenprüfung steht die vollständige Pflegehandlung, die auch die Problemerkennung, Planung und Reflexion berücksichtigt. Dabei werden neben kurativen Maßnahmen präventive, rehabilitative und palliative Aspekte aufgegriffen, Adressaten aller Altersgruppen und in allen Lebenslagen mit einbezogen und ein besonderer Fokus auf Pflegeprozess und -qualität sowie Anleitung, Schulung und Beratung gelegt. Differenzierte Prüfungsmaterialien ermöglichen eine Operationalisierung sowie die Implementierung in vielfältigen Bereichen und Einrichtungen der Gesundheitsberufe. Luisa Weidauer ist gelernte Gesundheits- und Krankenpflegerin und Berufspädagogin für das Gesundheitswesen (M.A.). Sie studiert Erziehungswissenschaft für das Lehramt am Berufskolleg an der Westfälischen Wilhelms-Universität in Münster und ist als Lehrerin für Pflegeberufe an verschiedenen Schulen und Einrichtungen tätig.
NeuroKids is the innovative answer to the clinical challenges in child neurology as workbook and corresponding app. With the basic idea of mind maps, the classic textbook has been further developed to provide more targeted information. An uniform classification allows a quick orientation: The Paediatric Clinical Scouts (PCS) provide a condensed knowledge overview and are a guide to diagnostic work-up and therapeutic decision-making. The PCS concentrate on the single patient and give professional skills for emergency medicine, for health care of chronically ill children and adolescents and rehabilitative and palliative therapy. The PCS are complemented by a comprehensive, precise, internationally oriented drug register as well as schemes for neurological and developmental neurological examination with the evidence of good practice. I am very happy that NeuroKids was endorsed and supported by the board of the European Paediatric Neurology Society (EPNS). We sincerely believe this is a major step forward in training and educating young and old paediatric neurologists and are therefore extremely happy to collaborate in this project. (Lieven Lagae, President European Paediatric Neurology Society) In cooperation with: European Paediatric Neurology Society (EPNS) Ludwig-Maximilians-University Munich, Germany Paediatric Neurology and Developmental Medicine, Childrens Hospital Ludwig-Maximilians-University Munich, Germany Institute for Medical Education (DAM) Ludwig-Maximilians-University Munich, Germany Center for International Health (CIH) Prof. Dr. med. Prof. h. c. Florian Heinen, Head of Departement Paediatric Neurology and Developmental Medicine, Children=s Hospital, University of Munich, Germany.
This book presents the most up-to-date and innovative information on the targeting and treatment of a wide range of childhood cancers by means of radiation therapy. Written by global experts in pediatric radiation oncology, it documents in detail the treatment regimens appropriate to each disease, highlighting the recent advances that promise to improve rates of survival and cure. The use of image-guided and intensity-modulated radiation therapy is clearly described, and careful attention is also devoted to the roles of proton therapy, stereotactic radiosurgery, stereotactic fractionated radiosurgery, and modulated arc radiotherapy. Separate chapters address localization and verification procedures and anesthesia; pediatric radiation oncology in the palliative care setting; and aspects that are especially relevant in low- and medium-income countries. Beyond clinical radiation oncology, relevant information is provided on radiation physics. The book concludes by examining future directions in the field. Dr. Thomas E. Merchant is Chair of Radiation Oncology at St. Jude Childrens Research Hospital in Memphis, Tennessee, Baddia J. Rashid Endowed Chair in Radiation Oncology, and former chairman of the Radiation Oncology Discipline, Childrens Oncology Group (COG). Dr. Merchant is board certified in Radiation Oncology and received his medical degree from the Chicago College of Osteopathic Medicine, Chicago, Illinois and Ph.D. in experimental pathology from the University of Utrecht, The Netherlands. As Chair of Radiation Oncology, Dr. Merchant oversees a department that includes nearly 70 faculty and staff dedicated to pediatric radiation oncology. The focus of his practice and research includes the following diseases: medulloblastoma, ependymoma, craniopharyngioma, and low-grade glioma. His special interests include brain tumors in young children, side effects of radiation therapy, re-irradiation, and proton therapy. He led the development of the St. Jude Red Frog Events Proton Therapy Center. The worlds first proton therapy center dedicated solely to the treatment of pediatric cancer patients. Dr. Rolf-Dieter Kortmann is a Professor in Medicine and Head of Department of Radiation Therapy, University of Leipzig, Germany. Dr. Kortmann was trained in radiology and radiooncology at the Department of Radiology and the Department of Radiooncology in Stuttgart, Essen and Tuebingen, Germany. The scientific expertise comprises quality control in radiation oncology with special emphasis on geometric precision of different radiotherapy technologies including craniospinal irradiation. After qualification for radiation oncology in 1992, scientific research focused mainly on childhood brain tumours finally leading to the establishment of the German Study and Reference Centre for Paediatric Radiation Oncology in Childhood Brain Tumours. With the introduction of prospective brain tumour trials in Germany in the early 90s prospective quality control programmes for radiotherapy were introduced on a nationwide level. The activities also included prospective trials of SIOP (International Society for Paediatric Oncology) for medulloblastoma and intracranial germ cell tumours. Since 2004 educational programmes have been created for the now independent countries of the former Soviet Union in collaboration with the International Atomic Energy Agency (IAEA) and the European Society of Therapeutic Radiation Oncology (ESTRO). Currently, ESTRO-PROS Teaching Courses are organized addressing radiation oncologists worldwide. Special Interest: Paediatric Radiooncology, CNS Tumours, Quality Assurance
This progressive reference redefines qualitative research as a crucial component of evidence-based practice and assesses its current and future impact on healthcare. Its introductory section explains the value of sociocultural context in case conceptualization, and ways this evidence can be integrated with quantitative findings to inform and transform practice. The bulk of the books chapters review qualitative research in diverse areas, including pain, trauma, heart disease, COPD, and disabling conditions, and examine ways of effectively evaluating and applying qualitative data. This seismic shift in perception moves the healing professions away from traditional one-size-fits-all thinking and toward responsive, patient-centered care. Among the topics in the Handbook : ·Examining qualitative alternatives to categorical representation. ·The World Health Organization model of health: what evidence is needed? ·Qualitative research in mental health and mental illness. ·Qualitative evidence in pediatrics. ·The contribution of qualitative research to medication adherence. ·Qualitative evidence in health policy analysis. The Handbook of Qualitative Health Research for Evidence-Based Practice offers health and clinical psychologists, rehabilitation specialists, occupational and physical therapists, nurses, family physicians and other primary care providers new ways for understanding patients health-related experiences and opens up new ways for developing interventions intended to improve health outcomes. Karin Olson completed a B. Sc. in Nursing at the University of Alberta (1976), a Masters in Health Science with a focus in Health Promotion at the University of Toronto (1981), and a PhD in Educational Psychology at the University of Alberta (1990). She is a Professor in the Faculty of Nursing at the University of Alberta where she is also a Distinguished Scholar at the International Institute for Qualitative Methodology. Dr. Olson also holds an adjunct appointment to the Division of Palliative Medicine, Faculty of Medicine and Dentistry, University of Alberta. Her research focuses on use of qualitative and quantitative methods to develop an etiological model of fatigue in advanced cancer. Richard Young is Professor of Counselling Psychology at the University of British Columbia. He is a Fellow of both the Canadian Psychological Association and the American Psychological Association and a Registered Psychologist in British Columbia, Canada. His current research interests include the application of action theory and the qualitative action-project method to a variety of research topics, including the transition to adulthood, families, career development, counselling, health, and suicide. He is the author of over 75 articles published in scholarly journals, and a number of other publications, including five co-edited or co-authored books. His most recent co-authored book is Transition to adulthood: Actions, projects, and counseling (Springer-Science, 2011). He is the past-president of Division 16 (Counselling Psychology) of the International Association of Applied Psychology. Dr. Izabela Z. Schultz is Professor of Rehabilitation Psychology and Director of Graduate Program in Vocational Rehabilitation Counselling in the Department of Educational and Counselling and Special Education at the University of British Columbia. Dr. Schultz is doubly board certified as diplomate in clinical psychology, American Board of Professional Psychology and as diplomate of the American Board of Vocational Experts. She has received international awards for her innovative research on prediction of occupational disability and professional leadership awards for major contributions to medico-legal aspects of rehabilitation psychology. She has published several books and numerous seminal papers and book chapters in the field of occupational disability and rehabilitation. She is an editor of the Work and Disability Section of Springers Psychological Injury and the Law and a founding member of this international journal. Recently, she completed, with Dr. Sally Rogers, the pioneering Work Accommodation and Retention in Mental Health (Springer). Dr. Schultz is also a co-chair of the American Psychological Associations Task Force on Assessment and Treatment of Persons with Disabilities. She has been leading development of best-evidence-informed practice guidelines in early musculoskeletal pain interventions, in work accommodation and retention in mental